Coping

Parents And Caregivers: We Need Your Input!

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Dear Parents, Caregivers and readers of Beyond Autism Awareness, please take a very brief (5-10min) survey about your views regarding your child’s Autism diagnosis, how it has impacted you and some of the methods you employ to cope.  This is a blind survey but does include a demographic section; feel free to modify dates, etc as you wish.  Understanding the impact that Autism has on you as a parent or caregiver is valuable and needs to be quantified.  Thank you in advance -Ed

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Scott Brown is in his senior year at SUNY Purchase studying Psychology. His area of interest is Autism and for his senior project he created a survey along with his faculty mentor (see description below). If you have a child diagnosed with Autism, Asperger’s, PDD-NOS, or another diagnosis on the Autism Spectrum, would you please take the time to fill out this survey.  Scott hopes to present his findings at a senior presentation in addition to graduating with his Bachelor’s degree on May 16!  Please forward to any other parents, guardians or caregivers you may know that would be willing to participate.   It is much appreciated.

The following link is for a research study investigating Coping Strategies and Advocacy in parents of children with Autism.  The survey will take about 10 minutes and it is our hope that the data will contribute to the research on Adaptive Coping Strategies for parents of children with Autism. Upon completion of the survey, please feel free to forward the link to any other parent who may be willing to fill out the survey.  Thank you for your participation.
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                      http://www.psychsurveys.org/sb/coping

You Gotta Laugh

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FOR KIDS WITH AUTISM LAUGHTER IS THE BEST MEDICINE

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Have you heard the expression “Happiness is a choice”? For families that include kids with autism, that couldn’t be truer! Parents dealing with this mysterious and frustrating condition are under enormous amounts of pressure. It’s likely that in addition to their child going to school, they are also running to numerous therapies, activities, and appointments. If they have more than one child, it can be sheer insanity. As nice as the expression is, you certainly can’t force happiness, but by adding purposeful joy and laughter into your life, you can not only help your autistic child, but also benefit yourself, your spouse, and your other children.

When our third child was eight years old, we heard of Asperger’s syndrome for the first time. We were thrilled to finally have a real diagnosis. Mark was quirky and happy, and with high-functioning autism, he and our other three kids were joyful, silly children. When Mark was 12 years old, our entire world changed. It became obvious that something was very different about our sixth child, seven-month-old Nathan. No Asperger’s this time, this was full-blown (doctor’s words) autism. Before even a year old, he couldn’t handle noise, touching, textures…the list goes on. I was devastated and mourning for my baby who seemed to be hurting all the time.

As Nathan got a little older, we started to notice things that made him giggle here and there. Boy, did we exploit that! For example, Daddy would put two soda bottle lids over his eyes and just sit there until Nathan noticed and lost it laughing. We’d replay the opening credits of a movie where a guy pops into and out of the shot…for an hour! Just silly things. By the time our last two kids came, back to back, we weren’t so shocked that number seven was an “Aspie” too. There’s another expression, “If we didn’t laugh, we’d cry.” That laughter is crucial for us! Here’s what else has gotten us through:

  • With some kids with autism, it takes months to detect their pattern of humor; just relax and observe what makes them laugh.
  • Take note of what’s happening when they give a little giggle or a full-on fit of laughter. For Nathan, sudden surprises and things way out of place crack him up. Do calm, but unexpected things, like the soda lid eyes.
  • Keep a journal, notebook, or, like we do, a big piece of poster board on the wall to write down the funny things your kids say. Autistic kids are usually very literal, so you end up with some hysterical stuff! I like to tell Nathan, “You make Mama laugh,” when he says or does something silly. Now he makes an effort to do it!
  • Know when to stop. You know their signs of “being done,” don’t push too much.
  • Check out the book, The Funny Side of Autism by Lisa Masters.

 

http://www.whattoexpect.com/wom/family-life/for-kids-with-autism-laughter-is-the-best-medicine.aspx